# Death of Brazilian influencer Elis Lima Carneiro

> Live situation record from CLSTR: https://clstr.news/situations/death-of-brazilian-influencer-elis-lima-carneiro
> Updated: 2026-10-02T23:20:00.000Z. Sources: 14. Developments: 2.

Elis Lima Carneiro, a five-year-old Brazilian social media influencer, has died in Boa Vista, Roraima. She and her twin sister, Eloá, were the first twins known to be diagnosed with Hutchinson-Gilford Progeria Syndrome, an extremely rare genetic condition that causes rapid cellular aging in children.

Reports indicate the cause of death was a generalized pulmonary infection. The family, who gained a significant following on Instagram and TikTok by documenting the twins’ lives, used their platforms to advocate for inclusion and provide visibility for rare diseases. Following her death, the family held a funeral on October 1st. Her brother, Guilherme Lago, noted that Elis left a legacy of strength and courage.

## Timeline

### 2026-10-02: Elis Lima Carneiro dies at age 5 from rare progeria syndrome

Five-year-old Elis Lima Carneiro, a Brazilian social media star known for documenting her life with the rare progeria syndrome alongside her twin sister, has died.

4 sources. https://clstr.news/cluster/elis-lima-carneiro-dies-at-age-5-from-rare-progeria-syndrome

### 2026-09-30: Elis Lima Carneiro, Brazilian influencer with rare aging syndrome, dies at 5

Brazilian social media influencer Elis Lima Carneiro has died at age 5 from a rare genetic condition called Hutchinson-Gilford Progeria Syndrome, which causes rapid aging.

10 sources. https://clstr.news/cluster/elis-lima-carneiro-child-with-rare-progeria-syndrome-dies-in-brazil

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Cite as: Death of Brazilian influencer Elis Lima Carneiro. CLSTR, https://clstr.news/situations/death-of-brazilian-influencer-elis-lima-carneiro