# Endometriosis awareness and diagnosis in Germany

> Live situation record from CLSTR: https://clstr.news/situations/endometriosis-awareness-and-diagnosis-in-germany
> Updated: 2026-10-14T02:00:00.000Z. Sources: 6. Developments: 2.

Efforts to support and inform patients regarding endometriosis have been highlighted through regional initiatives in Germany, such as action days in the Miesbach and Rosenheim districts. These programs aim to provide medical insights and multidisciplinary support to improve the quality of life for those affected.

Data from the health insurance provider IKK Südwest indicates a significant rise in endometriosis diagnoses between 2019 and 2025 across Hessen, Saarland, and Rheinland-Pfalz. Overall diagnoses for members rose by approximately 45 percent, with the most substantial increase of 91 percent observed among women aged 20 to 29. Jörg Loth, head of IKK Südwest, suggested this trend may reflect improved awareness and diagnostic capabilities.

## Timeline

### 2026-10-14: Endometriosis diagnoses rise sharply in parts of Germany

Endometriosis diagnoses among IKK Südwest members in Hessen, Saarland, and Rheinland-Pfalz rose significantly between 2019 and 2025, with a 91 percent increase in women aged 20 to 29.

2 sources. https://clstr.news/cluster/endometriosis-diagnoses-rise-sharply-in-parts-of-germany

### 2026-09-29: Endometriosis awareness and support initiatives in Germany

Endometriosis affects one in ten women, often requiring specialized gynecological care. Support events in Germany aim to provide medical guidance and community exchange for those managing the chronic condition.

4 sources. https://clstr.news/cluster/endometriosis-awareness-and-support-initiatives-in-germany

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Cite as: Endometriosis awareness and diagnosis in Germany. CLSTR, https://clstr.news/situations/endometriosis-awareness-and-diagnosis-in-germany