# Rare disease awareness endurance challenges in Italy > Live situation record from CLSTR: https://clstr.news/situations/rare-disease-awareness-endurance-challenges-in-italy > Updated: 2026-09-21T13:31:38.000Z. Sources: 5. Developments: 2. Individual endurance challenges in Italy have been launched to raise awareness and funding for rare diseases. In mid-September, Alessia Scarpone, president of the Amici di Alessia APS association, began a walking project titled ‘Il Cammino delle Sirene – Un passo dopo l’altro, insieme’. The walk along the Adriatic coast from Giulianova to Sirolo aims to highlight the challenges of living with myasthenia gravis and other neuromuscular diseases, while emphasizing the role of caregivers and the need for better accessibility. Following this, ultrarunner Andrea Accorsi launched ‘Connect 4 long way’, an 815-kilometer endurance challenge across the Emilia-Romagna and Tuscany regions. This expedition, involving running and cycling through the Apennines and Apuan Alps, seeks to raise funds for the National Association of Rare Diseases (ANMR) Onlus to support research and assistance for patients with Cdk5 syndrome. ## Timeline ### 2026-09-21: Andrea Accorsi to run 815 km across Italy for rare disease research Ultrarunner Andrea Accorsi is undertaking an 815-km journey through Italy's historical routes to raise funds for Cdk5 syndrome research via the ANMR Onlus. 3 sources. https://clstr.news/cluster/andrea-accorsi-to-run-815-km-across-italy-for-rare-disease-research ### 2026-09-11: Alessia Scarpone to walk from Giulianova to Sirolo for rare disease awareness Alessia Scarpone will walk from Giulianova to Sirolo from September 13-20 to raise awareness for myasthenia gravis, rare diseases, and the essential role of caregivers. 2 sources. https://clstr.news/cluster/alessia-scarpone-to-walk-from-giulianova-to-sirolo-for-rare-disease-awareness --- Cite as: Rare disease awareness endurance challenges in Italy. CLSTR, https://clstr.news/situations/rare-disease-awareness-endurance-challenges-in-italy