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Argentine boy seeks US clinical trial for Noonan syndrome
A six‑year‑old boy from Comodoro, Argentina, diagnosed with Noonan syndrome, requires treatment that is unavailable locally. The only option is to join a specific clinical trial at Boston Children’s Hospital in the United States.
The family has launched a public fundraising campaign to cover an estimated cost of 600 million Argentine pesos, which includes hospital fees, visas, travel, insurance and accommodation. The target must be met within two to three months while trial slots remain open. Donations are being collected through a designated account at the Banco de la Nación Argentina.
Entities
Boston Children’s Hospital · Comodoro, Argentina · Instituto Fleni · Noonan syndrome