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[HEALTH] · Canada · 42 sources

started 7 days ago · updated 7 days ago

B.C. government partners with UBC and McGill for rare disease gene therapy

gene therapy spastic paraplegia rare disease neurodegenerative disease personalized medicine

The British Columbia Ministry of Health has announced a partnership with the University of British Columbia and McGill University to develop a personalized gene-editing therapy. The initiative aims to treat Gurmoh, a three-year-old boy from Surrey, who is battling a rare and progressive neurodegenerative disease known as spastic paraplegia.

Gurmoh’s condition is caused by a de novo mutation, which is not present in either parent. The disease affects the nerves in the spinal cord that control movement, leading to progressive muscle stiffness, speech difficulties, and leg weakness. Gurmoh is reported to be the only known case of this specific disease in Canada.

The announcement follows extensive community fundraising efforts by Gurmoh’s parents, Stalin and Navpreet Gill, who raised over $2.7 million to fund the creation of the therapy. The family had previously met with health officials to discuss potential provincial funding for the treatment.

Entities

British Columbia Ministry of Health · Gurmoh Gill · McGill University · Surrey, British Columbia · University of British Columbia

Claims

What the coverage asserts, and how many sources carry each claim.

[● 3 SOURCES] Gurmoh, a three-year-old from Surrey, has spastic paraplegia caused by a de novo mutation. cowichanvalleycitizen.com · abbynews.com · oakbaynews.com
[● 3 SOURCES] The B.C. Ministry of Health is partnering with UBC and McGill University to develop personalized gene therapy. cowichanvalleycitizen.com · abbynews.com · oakbaynews.com
[● 14 SOURCES] Gurmoh is the only known case of this specific disease in Canada. similkameenspotlight.com · kimberleybulletin.com · northernsentinel.com · crestonvalleyadvance.ca · pentictonwesternnews.com · +9 more
[● 14 SOURCES] Gurmoh's family raised more than $2.7 million through community fundraisers. similkameenspotlight.com · kimberleybulletin.com · northernsentinel.com · crestonvalleyadvance.ca · pentictonwesternnews.com · +9 more
[● 3 SOURCES] The B.C. Ministry of Health is partnering with UBC and McGill to develop a personalized gene-editing therapy. cloverdalereporter.com · missioncityrecord.com · peacearchnews.com
[● 3 SOURCES] The therapy targets a de novo mutation causing spastic paraplegia in a three-year-old boy. cloverdalereporter.com · missioncityrecord.com · peacearchnews.com
[● 8 SOURCES] The B.C. Ministry of Health is partnering with UBC and McGill to develop personalized gene therapy. similkameenspotlight.com · kimberleybulletin.com · northernsentinel.com · crestonvalleyadvance.ca · pentictonwesternnews.com · +3 more
[● 8 SOURCES] Gurmoh has spastic paraplegia caused by a de novo genetic mutation. similkameenspotlight.com · kimberleybulletin.com · northernsentinel.com · crestonvalleyadvance.ca · pentictonwesternnews.com · +3 more

Sources

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - The Similkameen Spotlight [similkameenspotlight.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [chemainusvalleycourier.ca]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [westknews.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [agassizharrisonobserver.com]

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B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [coastmountainnews.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - Cowichan Valley Citizen [cowichanvalleycitizen.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [grandforksgazette.ca]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - Haida Gwaii Observer [haidagwaiiobserver.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [kimberleybulletin.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [lakecowichangazette.com]

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B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - Nelson Star [nelsonstar.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [northernsentinel.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [todayinbc.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [vancouverislandfreedaily.com]

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B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [100milefreepress.net]

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B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - Abbotsford News [abbynews.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - Port Alberni Valley News [albernivalleynews.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [aldergrovestar.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - The Ashcroft-Cache Creek Journal [ashcroftcachecreekjournal.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [campbellrivermirror.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [clearwatertimes.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [cloverdalereporter.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [comoxvalleyrecord.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [crestonvalleyadvance.ca]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [langleyadvancetimes.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [mapleridgenews.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [missioncityrecord.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - Nanaimo News Bulletin [nanaimobulletin.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [oakbaynews.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - Vanderhoof Omineca Express [ominecaexpress.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [peacearchnews.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [pentictonwesternnews.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [revelstokereview.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [saanichnews.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - Salmon Arm Observer [saobserver.net]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [terracestandard.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [thenorthernview.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - Chilliwack Progress [theprogress.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy [vernonmorningstar.com]

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B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - Victoria News [vicnews.com]

7 days ago

Advancing treatment for children with rare genetic diseases - Indo-Canadian Voice [voiceonline.com]

7 days ago

B. C. government partners with UBC, McGill to develop life-saving gene therapy for Surrey boy - Tofino/Ucluelet Westerly News [westerlynews.ca]

7 days ago