Elis Lima Carneiro dies at age 5 from rare progeria syndrome

Elis Lima Carneiro, a five-year-old Brazilian social media personality, has passed away after battling Hutchinson-Gilford Progeria Syndrome (HGPS). The rare genetic condition causes rapid, premature aging in children.

Elis and her twin sister, Eloá, gained international recognition as the only twins in the world diagnosed with HGPS. Through TikTok and Instagram, the sisters shared their daily lives, accumulating over 970 million likes and providing visibility to those living with rare diseases. Their family used these platforms to advocate for inclusion and to demonstrate resilience despite their medical challenges.

Following her death, the family held a funeral on October 1st. Her brother, Guilherme Lago, stated that Elis left a legacy of strength and courage, having touched millions of people by showing the importance of valuing life despite a short lifespan.