Noah Higón honored with award for rare disease advocacy

Noah Higón has received an award in the ‘Overcoming’ category from the newspaper La Vanguardia for her work in raising awareness for rare diseases.

In a public tribute shared on social media, Higón expressed deep gratitude to her parents, highlighting the vital role of caregivers. She noted that while much attention is given to patients and their struggles, the fear, exhaustion, and suffering experienced by those providing daily support often go unrecognized. She stated that her achievements would not be possible without their constant presence and support.