Heatwave threatens lives of rare‑skin‑disease patients in France and Spain

People with ichthyosis, a rare genetic skin disorder that severely limits or prevents sweating, face a life‑threatening risk during heatwaves. Dermatologist Ángela Hernández estimates about 300 sufferers in Spain and highlights that without the ability to evaporate heat through sweat, patients can suffer fatal hyperthermia. Alberto Gómez, a 36‑year‑old physics‑chemistry teacher, describes constant anxiety about heatstroke and protects himself with a UV‑blocking umbrella, avoiding hats that trap heat. He continues limited indoor exercise in air‑conditioned spaces and uses specialized moisturising creams that do not block pores. His 17‑year‑old son Álvaro experienced severe redness and overheating as a child, requiring fans at school and limited outdoor activity during summer. The condition is diagnosed at birth, presents with dry, rough, peeling skin, and has no cure beyond careful hydration and skin care. Experts urge patients to avoid direct sun, stay in shade, keep cool environments, and monitor for signs of overheating.