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2 clusters · 2 sources · 12 days · First seen · Last updated

Brazil legislative response to lymphangioleiomyomatosis

Overview

In August 2026, the Brazilian Senate Human Rights Commission held a public hearing to address the challenges faced by patients with lymphangioleiomyomatosis (LAM), a rare and severe lung disease that primarily affects women. During the hearing, officials noted that while the medication sirolimus is provided free of charge through the Unified Health System (SUS), patients face significant obstacles including late diagnosis and difficulties accessing treatment centers. It was estimated that of approximately 3,000 cases in Brazil, only about 500 have been officially diagnosed.

Following these discussions, the Economic Affairs Commission (CAE) approved Bill 2.220/2024, authored by Senator Alan Rick. The bill proposes income tax exemptions on pensions and retirements for individuals suffering from LAM to mitigate the financial burdens of specialized medication, exams, and travel. If no appeal is filed, the proposal will move to the Chamber of Deputies.

Entities

Damares Alves · Ministry of Health · Senate · Brazilian Unified Health System · Unified Health System

Timeline

  1. 13 days ago

    [POLITICS] 2 sources
    Brazil Senate commission approves tax exemption for rare lung disease

    The Brazilian Economic Affairs Commission approved a bill to exempt pensions and retirements from income tax for patients with lymphangioleiomyomatosis (LAM), a rare pulmonary disease.

  2. 24 days ago

    [HEALTH] 4 sources
    Brazil Senate hearing addresses rare lung disease challenges

    A Brazilian Senate hearing addressed the difficulties in diagnosing and treating lymphangioleiomyomatosis (LAM), noting that only 500 of an estimated 3,000 cases have been diagnosed.

Sources

es1.com.br · portaldiarioderondonia.com