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Shanghai gene‑editing trial fatality
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2026-07-26 18:28 UTC → 2026-07-27 01:27 UTC ·
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In March 2025 a six‑year‑old Chinese girl, identified only as “Mei,” received died a week after receiving an experimental base‑editing gene‑therapy at Shanghai’s Xinhua Hospital to repair a CHD3 mutation linked to Snijders‑Blok‑Campeau syndrome. After a spinal‑fluid infusion of viral vectors, she suffered a severe immune reaction and died within a week. Hospital records later classified the death as definitely related to the infusion. cerebrospinal‑fluid infusion of viral vectors. Investigations by Science and Retraction Watch uncovered deliberate concealment of that the fatal outcome by the research team and local health authorities. The university overseeing was omitted from the trial, trial’s scientific publication. Shanghai Jiao‑Tong University, formed University launched a formal inquiry, created a special working group group, and faced an administrative sanction, while local health authorities fined the hospital received a fine hospital. The trial’s lead researcher, Zilong Qiu, was scrutinised but received no public disciplinary action against action. The child’s parents had paid roughly $860,000 for the scientists. procedure. The case has reignited global debate over the oversight, transparency, and ethical limits of “n‑of‑1” human gene‑editing experiments, prompting calls for corrective actions in the scientific literature and stricter regulatory scrutiny.
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- 2026-07-27 01:27 UTC Shanghai gene‑editing trial fatality
- 2026-07-26 18:28 UTC Shanghai gene‑editing trial fatality
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