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[SITUATION] · [QUIET] · [HEALTH]

2 clusters · 6 sources · 5 days · First seen · Last updated

Spanish healthcare funding for butterfly skin treatment

Overview

The funding of Vyjuvek, a topical gene therapy for epidermolysis bullosa (commonly known as ‘butterfly skin’), has seen shifts in regional and national authorization in Spain.

Initially, the Andalusian regional government announced it would independently fund the medication for its citizens after the Spanish central government refused to finance the treatment. The Andalusian Health Minister, Antonio Sanz, criticized the central government’s refusal as a “profound error” that caused harm to families.

Subsequently, Spain’s Ministry of Health authorized the National Institute of Health Management (INGESA) to fund the gene therapy for a patient in Ceuta. The treatment, which costs approximately 300,000 euros annually, requires specific frozen storage and controlled preparation at the Ceuta University Hospital.

Entities

Ministry of Health · Junta de Andalucía · Spain · Andalucía · Vyjuvek

Timeline

  1. 9 days ago

    [HEALTH] 2 sources
    Spain authorizes gene therapy for butterfly skin patient in Ceuta

    Spain's Ministry of Health has authorized the funding of a 300,000-euro gene therapy treatment for a patient in Ceuta with epidermolysis bullosa, a rare condition known as ‘butterfly skin’.

  2. 14 days ago

    [POLITICS] 4 sources
    Andalucía to fund butterfly skin treatment despite Spanish government refusal

    Andalucía will continue to fund the Vyjuvek treatment for butterfly skin patients after the Spanish central government declined to finance the medication.

Sources

diariodealmeria.es · diariodejerez.es · elpueblodeceuta.es · esdiario.com · granadahoy.com · isanidad.com