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[SITUATION] · [QUIET] · [HEALTH]
2 clusters · 4 sources · 25 days · First seen · Last updated
Rare disease awareness and care in Serbia
Overview
In September 2026, regional efforts to address rare diseases in Serbia were highlighted through two major conferences.
At the ‘Caring for Rare’ conference in Belgrade, Minister Milica Đurđević Stamenkovski emphasized the need for better-informed medical professionals to prevent mismanaged conditions and delayed diagnoses. She stressed that productive collaboration between state institutions and patient associations is essential for improving patient outcomes.
Later in the month, the ISKRA Association hosted its inaugural ‘From Diagnosis to Medicine’ conference in Novi Pazar. This event focused on connecting families with expertise and addressing challenges in accessing therapy and legal rights. During the conference, medical professionals noted advancements in local treatment, such as the availability of hemin arginate and givosiran for acute intermittent porphyria at the Novi Pazar General Hospital.
Entities
Muamera Rahić · Opšta bolnica Novi Pazar · Miliica Đurđević Stamenkovski · Sabir Sagdati · Caring for Rare
Timeline
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[HEALTH] 2 sourcesISKRA Association holds first rare disease conference in Novi Pazar
The ISKRA Association hosted its first conference in Novi Pazar to support families facing rare diseases by connecting them with medical experts and discussing access to essential treatments.
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[HEALTH] 2 sourcesCaring for Rare conference opens in Belgrade to address rare diseases
At the Caring for Rare conference in Belgrade, Serbian Minister Milica Đurđević Stamenkovski called for better medical expertise to address the challenges of rare diseases and improve patient care.
Sources
nedeljnik.rs · politika.rs · rtk.co.rs · rtvnp.rs