Get alerts on this situation
We’ll email you as it develops, and you can follow the whole thread from day one.
Unsubscribe anytime.
[SITUATION] · [ACTIVE]
2 clusters · 4 sources · 14 days · First seen · Last updated
Categories: HEALTH
UK campaigns for NHS access to costly treatments
Entities: RRM2B-related mitochondrial disease · Colin Wells · Yvette Cooper · Jess Duggan · Enhertu
Overview
In July 2026, patient‑led groups began pressuring the NHS to make the targeted therapy Enhertu available for people with metastatic HER2‑low breast cancer. Campaigners highlighted a postcode‑based “lottery” that leaves patients in England, Wales and Northern Ireland without the drug, even though it is approved in Scotland and across much of Europe. A poll showed strong public support for ending the inequity.
Two weeks later, families affected by advanced breast cancer and rare mitochondrial disease broadened the push. After the NHS refused to fund Enhertu on cost grounds, a mother raised more than £50,000 through a newspaper appeal and urged the new health secretary to approve the drug. At the same time, another family launched a crowdfunding drive for research into a rare RRM2B‑related mitochondrial condition affecting their children. The later snapshot therefore shows the campaign moving from advocacy and public opinion surveys to active fundraising and calls for policy change covering both cancer and rare‑disease therapies.
Timeline
-
3 days ago
[HEALTH] 2 sourcesUK families campaign for NHS funding of costly cancer and rare‑disease treatmentsUK families Jess Duggan and the Wells‑MacLeod family are crowdfunding for costly treatments—Enhertu for breast cancer and experimental therapy for rare mitochondrial disease—pressuring the NHS and seeking new‑d
-
16 days ago
[HEALTH] 2 sourcesUK campaign urges NHS to approve Enhertu for metastatic breast cancerPatient Kathryn Hulland and UK cancer charities demand NHS approval of Enhertu, a targeted drug that extends survival for HER2‑low metastatic breast cancer, noting its availability elsewhere and strong public支持
Sources
independent.co.uk · nottinghampost.com · teamdogs.co.uk · uk-times.com